- Authors
- Jennifer NW Lim University of Wolverhampton
- Rosa AlmeidaFundación INTRAS, Valladolid
- Vjera Holthoff-DettoAlexianer Krankenhaus Hedwigshöhe, Berlin
- Geke DS Ludden
- Tina Smith
- Kristina Niedderer
- title
- What is needed to obtain informed consent and monitor capacity for a successful study involving People with Mild Dementia?
- subtitle0
- Our experience in a multi-centre study
- Please use the following URL when quoting:
- https://nbn-resolving.org/urn:nbn:de:bsz:14-qucosa2-366874
- conference
- International MinD Conference 2019. Dresden, 19.-20.September 2019
- original_in_proceeding00000
- Designing with and for People with Dementia - 13
Herausgeber: Kristina Niedderer, Geke D. S. Ludden, Rebecca Cain, Christian Wölfel
Erscheinungsort: Dresden
Verlag: TUDpress
Erscheinungsjahr: 2019
Seiten: 139-150
ISBN: 978-3-95908-183-2 - publication_date
- 2019
- Abstract (EN)
- Strategies on informed consent process and capacity monitoring for mild dementia research are at developing state. We reflected on our experience and found that the successful collection of informed consent and full participation of PwD required the involvement of familiar healthcare professionals/care workers/staff at the recruitment and data collection stages and this needs to occur in an active support environment. Time is another important factor affecting the success of the study.
- Keywords (DE)
- Demenz, MinD Conference, leichte Demenz, Einwilligungsverfahren, Kapazitätsüberwachung, multizentrische Studie
- Keywords (EN)
- Dementia, MinD Conference, mild dementia, informed consent process, capacity monitoring, multicentre study
- Classification (DDC)
- 620
- Classification (RVK)
- ZG 9148
- Publishing house
- TUDpress, Dresden
- version
- publizierte Version / Verlagsversion
- URN Qucosa
- urn:nbn:de:bsz:14-qucosa2-366874
- Qucosa date of publication
- 19.12.2019
- Document type
- in_proceeding
- Document language
- English
- licence